In a middle-income country like Ecuador, the survival chances of premature children have increased due to the institutionalization of births and improved postnatal care. However, this positive trend has led to more children surviving injuries that can result in disabilities. The challenge lies in the fact that the healthcare system is not-equipped to provide lifelong care for individuals with disabilities. Primary health care primarily focuses on acute problems, leaving families with disabled children to care for themselves. National and local health systems lack sufficient support, and healthcare workers are trained to address acute issues (such as ear infections or bone fractures) but not chronic conditions like spasticity in children. Consequently, secondary disabling conditions like bone deformities arise impacting mobility and causing pain, which could have been prevented. Access to integrated healthcare is limited for people with disabilities, exacerbating the poverty cycle. In Ecuador, national policies consist of large-scale short studies, lacking a clear plan and relying on minimal information. The services provided are far from meeting the actual needs, not only in health-related facilities for people with disabilities but also at all levels of prevention, causing a considerable amount of preventable suffering. The gap between policy and implementation underscores the need for continuous commitment to translating policy into effective practice to achieve positive outcomes. There is a need to have high quality research that can improve health related quality of life for children and adolescents with cerebral palsy and other disabilities living in middle income countries. In this study, we focus on individuals diagnosed with cerebral palsy, specifically children and youth associated with the NGO Tapori Paladines de la Felicidad in Ecuador. Our research draws from a mixed-methods approach, combining qualitative and quantitative inductive content analysis. By analysing narratives, interviews, and relevant data collected over 30 years, we aim to gain comprehensive insights into the challenges faced by this vulnerable population within the Pomasqui community. Our findings will inform policy recommendations and enhance support systems for individuals with cerebral palsy.